I’m a cancer survivor with celiac disease and I’m living without a stomach since Jan 2018.
I’m married with three wonderful children. At the age of 32, I was diagnosed with a rare gene mutation in my CDH1 Gene. It was the same gene mutation that caused stomach cancer in three of my mothers family members. Being a carrier of this gene mutation gave me an 80%+ chance of developing stomach cancer. On top of that, once cancer is formed, it’s extremely hard to treat and almost always fatal.
I was given a choice: 1) monitor the situation and get scans/scopes/biopsies a few times a year to try and “catch” cancer early, or 2) have a prophylactic total gastrectomy (total removal of the stomach). The end goal: Live a very happy and long life. I didn’t like either option, to be honest, but option two seemed to have the best chance for me living a long life. It is also the sole recommendations of expert doctors familiar with this disease.
I moved forward with the total gastrectomy Jan 6th, 2018. I don't regret the decision as the pathology reports showed cancer had already formed. It was a difficult road back to health, however, and I'm happy to report I have made a full recovery and doing very well.
I'm looking forward to racing this IRONMAN 70.3. I'm dedicating this race to all my stomachless friends and those who have been affected by Stomach Cancer.
I will be raising funds and awareness for No Stomach For Cancer, who helps patients and provides grants for stomach cancer research. I'm hopeful that we can all join and raise $5,000! All donations come with a tax deduction receipt via email and the donations go straight to No Stomach For Cancer.
IRONMAN 70.3 - Florida - 4/14/2019
1.2 Mile Swim
56 Mile Bike
13.1 Mile Run
Please join me and cheer me on and consider a donation to this wonderful organization that saved my life, and many others.
The original race was planed for October of 2018 but it was cancelled due to hurricane damage.