Welcome to my Cure Angelman NOW fundraising page!
Katie was diagnosed with Angelman Syndrome on January 28, 2014. We thought that all the hope we had for our sweet girl's future went out the door when the diagnosis came crashing into our lives. FAST has given us back HOPE for Katie's future. We are so optomistic that she will walk and someday find her voice. Please consider donating to help us help Katie. As always, we appreciate all your love and support!
For those that don't know, Angelman Syndrome (AS) is a rare disorder affecting approximately 1 in 15,000 live births and is characterized by severe developmental delays, problems with motor coordination and balance (ataxia), loss of speech and epilepsy. Because of recent advancements in the understanding of AS, a cure for this disorder is not only possible, but probable. AS has been cured in the lab using several different approaches. We know what causes AS. We know that despite its often devastating effects, it is a simple disorder involving only one gene. We also know that curing AS will have a profound impact on other related disorders, such as Autism and Alzheimer Disease.
FAST is the largest non-governmental funder of Angelman Syndrome research and the only organization in the world that has a detailed plan and clear path towards a cure. FAST is setting a $2 million community goal for this year. If we can meet this $2 million goal, we have an excellent chance of getting those funds matched. This is amazing! We need your help to get to Katie's cure twice as FAST!FAST is committed to bringing life-changing treatments to clinical trial within two years, but we need your help. We are asking everyone to join us in the Cure Angelman Now initiative because together, we CAN do this. Our time is now and every single dollar counts in getting us closer to our goal.
Click SPONSOR ME to donate to my efforts or click Register to create your own site and join me in raising funds for Cure Angelman NOW!