$6,477.76
Take a Bite out of HAE One Stroke at a Time September 17, 2016 HEREDITARY ANGIOEDEMA ASSOCIATION INC
Take a Bite out of HAE One Stroke at a Time September 17, 2016
$6,477.76
HEREDITARY ANGIOEDEMA ASSOCIATION INC
Take a Bite out of HAE One Stroke at a Time September 17, 2016
Take a Bite out of HAE One Stroke at a Time September 17, 2016

Michael's page has now expired

1017 days ago, Michael created this page and gave everything for HEREDITARY ANGIOEDEMA ASSOCIATION INC:

  • They posted 2 times.

  • Shared their page with everyone they could.

  • Received 75 donations from generous family and friends.

  • Raised $6,477.76.

My Story

Michael Ardito is a 16 year old high school student on a multi-year mission to raise awareness and money for research to find a cure for Hereditary Angioedema. Both his step dad, John Harrington, and his sister, Kati Harrington, have HAE. Michael has witnessed the swelling, the pain, and the life threatening dangers that this disease produces.

Effecting between 1 in 10,000 to 1 in 50,000, HAE is considered a rare genetic disease. But to those suffering from it and those witnessing it first hand, “rare” doesn’t matter. The episodes of edema striking various body parts without warning are beyond painful and have the potential to be life-threatening.

Knowing this, watching this, the family made a decision to take action against the suffering. They knew HAE needed a cure. Michael’s journey started four years ago when he, along with his mom, Nicole, and his younger brother, Chris, participated in a family triathlon. The goal was to raise awareness and money for a cure.

Michael’s quest took him to new heights (or depths). In 2014 and 2015 he swam across the Boston Harbor as a participant in Boston's Sharkfest as a way to raise both money for research and awareness. Michael has also spoken about HAE at many media and charity events. This year his commitment and passion supporting HAE research led him to Washington D.C. where he spoke with members of Congress on behalf of the HAE Patient Organization.

The results of these efforts are starting to show. This year we hit a milestone with the U.S. FDA approving the first and only pediatric treatment for HAE. Not wanting to rest on his laurels, Michael is taking the plunge into the cold waters of the Boston Harbor again this year!

On September 17th, 2016 the quest will continue. For the third consecutive year Michael will swim across the harbor while participating in this year's Boston Sharkfest Swim. The team will be the largest so far. Michael will be joined, once again, by friends Alex Cresanti and Jordyn Sommo along with several parents and adults who have been inspired by his efforts. We are excited to have these wonderful additions to the team. And so very grateful to Alex and Jordyn for their continued support.

Because there is yet to be a cure, we hope that you will support Michael as he accepts the challenge of funding HAE research, raising awareness about the disease and successfully completing his third Boston Sharkfest Swim.

Thank You

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HEREDITARY ANGIOEDEMA ASSOCIATION INC