MAUI OCEANFRONT MARATHON
20 JANUARY 2019
Why am I doing this marathon? My husband Neil and I feel unbelievably privileged and lucky to have both our daughters, now 7 and 2 years old. Our first daughter Ila was born at 31 weeks and 2 days and our second daughter Daisy arrived weighing just 545g on the edge of viability at 23 weeks and 2 days. We spent a total of 5 weeks in NICU with Ila then 102 days in NICU with Daisy and throughout this rollercoaster journey we found so much strength, care and support through all the help from personal experiences and practical advice from the Neonatal Trust and basically want to both thank them and also pay it forward for other families to have this amazing support!
The Neonatal Trust are committed to "Making a difficult start to life that little bit easier". The Trust aims to provide support to the families of premature and sick full-term babies as they make their journey through neonatal intensive care, the transition home, and onwards.
Dr Dieter Wolke from Germany is an amazing speaker and has carried out numerous longitudinal studies on the long term impact of preterm birth and is booked to be a keynote speaker at the COINN 2019 conference being held in Auckland next May. The conference theme is Enriched Family – Enhanced Care (Whannau/Ko e Fakakoloa’o e Famili, share the care) and will showcase the innovative neonatal care delivered by health professionals and experienced by families every day around the globe. The money I am aiming to fundraise will go towards helping educate health professionals from around the globe, mainly in NZ to progress their knowledge and skills in this area of neonatal care.
Having a premature baby can happen to any one expecting a baby. Every year approximately 10% of all babies are born premature (before 37 weeks gestation) in New Zealand. That’s one premature baby born every 90 minutes. There are also full-term babies whose condition or illness requires admission to a Neonatal Intensive Care Unit (NICU) after they are born. In all, over 5,000 babies have a difficult to start life in New Zealand each year. With premature birth, while sometimes there is a history, or a medical condition which may lead to premature birth, more often than not, a mother goes into premature labour with no warning. With full term babies, parents may know their baby is going to be born with a complication requiring admission to a NICU. In other circumstances, the complication becomes apparent once the baby is born. The Neonatal Trust supports each and every family in any of these situations and their care and support is like a big warm hug on these very rocky journies starting out in life.
So when I am finding it hard to get out of bed and run, I remind myself that I am running so that these tiny humans can not only survive but one day run too and Live their Best Life!
Please help me help the Neonatal Trust by giving whatever you can using the 'Give Now' button. The more people that know about The Neonatal Trust Auckland, the greater their impact, so please also spread the word by sharing my page with your friends and family. Thank you in advance for your generosity, it means a lot!