100 mile West Highland Way Walk for 22qIreland 22q11 Ireland
100 mile West Highland Way Walk for 22qIreland
22q11 Ireland
100 mile West Highland Way Walk for 22qIreland
100 mile West Highland Way Walk for 22qIreland

Gary's page has now expired

1523 days ago, Gary created this page and gave everything for 22q11 Ireland:

  • Shared their page with everyone they could.

  • Received 146 donations from generous family and friends.

  • Raised €9,269.27.

My Story

Most of you already know Finns story but for those who dont, here's a short version.
When Finn was born he had a heart murmer which then lead to open heart surgery at 3 months old. He was then diagnosed with Di George syndrome or 22q as its more commonly known.
After this we realised how much more work he was going to have to put in than his brothers ever had to.
His recovery with his heart has been great and he gets a yearly check up now to check the patch. He has been in physio for 2 years now due to low muscle tone and this has in turn caused the curve in his spine and he was diagnosed with scoliosis.
He now has to wear a body brace for 23 hours a day until he stops growing in his teens. Hopefully this early intervention will mean no spinal surgery later on. Fingers crossed.
Finn's mikestones like walking and talking were delayed but it doesnt stop him getting into every cupboard in the house and letting us know exactly what he wants and when!
His wee character shines through everyday and he's the toughest cookie ive ever had the pleasure of meeting! He loves his music and has his mammy's moves. His brothers are fantastic with him and they got on great together. He also loves tormenting his puppy Buster!
Finn's charity 22qIreland really helped us with support and information when he was diagnosed and i'm just trying to do my bit to help out as we get no funding!!
If you can help, fantastic, your donation is really appreciated. If you're not able to thats ok as well because its not all about the money, i'm trying raise awareness for 22q!
Thanks a million from myself,Rosanne, Finn and 22qIreland.

Thank You

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22q11 Ireland