As many of you know I (Simon) was diagnosed with Motor Neurone Disease at the beginning of the year. The extraordinary support I receive is worldwide, varied and sometimes very unexpected. The support I receive from Robert in and outside the workplace has been extremely motivating. As a thank you and to support the Macquarie University Hospital’s MND research centre we are both pledged to carry out the Ice Bucket challenge on Ribbons Day of Service being held on the 25 October.
This year the Sydney Ribbon Communication’s office is volunteering their day of service helping MND New South Wales. The team have been asked to help clear/tidy the back yards of two family’s that are members to MND New South Wales. During the course of the day we will carry out the Ice Bucket challenge. Please support the event by donating on our Web page. Every donation however small is greatly appreciated!
The Ice Bucket Challenge, sometimes called the ALS Ice Bucket Challenge, is an activity involving the dumping of a bucket of ice and water over a person's head, either by another person or self-administered, to promote awareness of the disease amyotrophic lateral sclerosis (ALS, also known as motor neuron disease and in the US as Lou Gehrig's disease) and encourage donations to research.
Macquarie University Centre for Motor Neuron Disease Research
Your donation is directed to one or more of the following areas:
• MND Research Centre - Enable doctors and researchers to conduct vital research into the causes and mechanisms of MND
• MND Clinic - Help patients access subsidised and best practice multidisciplinary care
• Biobank - Build our bank of biological samples for MND which may provide clues about the disease
• Clinical Trials - Assist scientists to investigate better treatments for people living with MND
Simon & Robert