We're the only Australian charity dedicated to supporting children and families affected by the rare birth condition, congenital diaphragmatic hernia, CDH Australia.
CDH means being born with a hole in the diaphragm, and affects 1 in 2,500 births.
This week, 2 families will receive a CDH diagnosis for their child, either during pregnancy, or at birth. The fatality rate is 50%.
Families are shattered by the loss of their child. CDH survivors face ongoing health complications. Emotional support is vital.
For a family receiving a CDH diagnosis, fear and anxiety can be overwhelming.
CDH Australia provides education, support and a community to share knowledge and experiences.